News About CdLS
The Foundation is a leading news source for CdLS developments, events, commentary, and media coverage. We continually update the news-related content in order to keep you informed.
CdLS Foundation receives four-star rating
12/15/11Charity Navigator, a premier charity evaluator, recently awarded the Cornelia de Lange Syndrome (CdLS) Foundation with their 4-star rating. This four out of four star rating is awarded to only one quarter of U.S. charities.
Team CdLS heads to Chicago this fall
07/11/11Nineteen dedicated runners are set to participate on Team CdLS in the famous Bank of America Chicago Marathon on October 9. Team members are among an estimated 45,000 participants in the 26.2-mile run. The team's goal is to raise $70,000 for the CdLS Foundation.
Foundation funds two research projects
06/15/11Long Island girl named ambassador of Team CdLS' New York City Marathon team
06/08/11Team CdLS names ambassador for Chicago Marathon
06/07/11Local runner commits to Chicago Marathon -- for a cause
09/22/11 , Well Commons, Lawrence, KSCornelia de Lange Syndrome affects between 1 in 10,000 and 1 in 30,000 people. By those statistics, somewhere between three and eight people in Lawrence are currently living with the syndrome.
NASCAR Nationwide Series Driver to Promote CdLS Foundation at Final Home Game of Bristol White Sox
08/30/11Abingdon, VA (August 29, 2011)--On Tuesday, August 30, NASCAR Nationwide Series driver Eric McClure will partner with the Bristol White Sox at their final home game of the season to increase awareness of the Cornelia de Lange Syndrome (CdLS) Foundation. The 32-year-old driver became passionate about the CdLS Foundation after meeting a special young lady with CdLS, Tess Ziemann, and her family at Food City Family Race Night in 2007.
Toddler raising awareness of CdLS
08/16/11 , WLFI, IndianapolisPhotographer to run NY Marathon to fight disorder
07/27/11 , Cherokee TribuneAimee Benson is no stranger to marathons.The 5-year Canton resident and entrepreneur, who this year launched her own business -- Aimee Benson Photography -- has participated in four 26.2-mile races.
Now, Benson is in training for one of the pinnacle events for marathon runners -- the ING New York City Marathon. But this time around, Benson is running for a cause.
Walk planned for Seabrook boy with rare disorder
06/07/11 , Hampton UnionNothing makes time pass more quickly than an annual event, and as the 4th annual "Hoof-it for Hunter" walk approaches, the changes in 5-year-old Hunter Knowles in the year that has passed are nothing short of amazing.
