News About CdLS
The Foundation is a leading news source for CdLS developments, events, commentary, and media coverage. We continually update the news-related content in order to keep you informed.
The Cornelia de Lange Syndrome Foundation (CdLS) raised over $6,000 in less than 24 hours on Giving Tuesday in November. The global day of giving harnesses the collective power of individuals, communities and organizations to encourage philanthropy and to celebrate generosity worldwide. Giving Tuesday is held annually on the Tuesday after Thanksgiving and the widely recognized shopping events Black Friday and Cyber Monday to help kick-off the holiday giving season.Read Full Story »
The Cornelia de Lange Syndrome Foundation (CdLS) has joined Giving Tuesday, a global day of giving that harnesses the collective power of individuals, communities and organizations to encourage philanthropy and to celebrate generosity worldwide. Occurring this year on November 29, Giving Tuesday is held annually on the Tuesday after Thanksgiving and the widely recognized shopping events Black Friday and Cyber Monday to kick-off the holiday giving season.Read Full Story »
Jim and Jen Pomfret are preparing to mark the twelfth year of what is called the hottest 5K of December. As the One Love, One Heart 5k slogan reads, "One love refers to the universal love and respect expressed by all people for all people." At the event, this love is directed towards those who have a rare genetic disorder called Cornelia de Lange Syndrome (CdLS). This includes their daughter, Maya.Read Full Story »
The Cornelia de Lange Syndrome (CdLS) Foundation, a national nonprofit family support organization, held its 28th annual CdLS Charity Golf Tournament at the Tapawingo National Golf Club in St. Louis, MO, on October 10.Read Full Story »
AVON, CT (July 25, 2016) -- The Cornelia de Lange Syndrome (CdLS) Foundation of Avon, CT, is proud to partner with the Travelers Championship for the first time to participate in their Birdies for Charity fundraising program.Read Full Story »
CdLS in the News
12/22/16Read Full Story »
When my daughter was pregnant with him, a sonogram indicated many abnormalities such as no arms, enlarged heart, spinal problems and on and on. She and her husband never even discussed abortion, and Adrian was actually taken by forced labor due to the threat on his life in the womb.
12/19/16Read Full Story »
A $960,000 playground in Park Holme -- Adelaide's first designed for children with
disabilities -- may have to be scaled back amid a cloud over a large chunk of its
David and Miranda Ainsworth of Florence spent eight years going to countless doctor appointments searching for a diagnosis for their daughter Anna Brooke.Read Full Story »
A Bournemouth charity has helped another young person with disabilities secure a job.Read Full Story »
"We just knew in our hearts there was something else going on," Miranda Ainsworth of Florence said Wednesday.Read Full Story »