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News About CdLS

The Foundation is a leading news source for CdLS developments, events, commentary, and media coverage. We continually update the news-related content in order to keep you informed.

News Releases

National Nonprofit Teams Up With PGA Tournament Charity Program

AVON, CT (July 25, 2016) -- The Cornelia de Lange Syndrome (CdLS) Foundation of Avon, CT, is proud to partner with the Travelers Championship for the first time to participate in their Birdies for Charity fundraising program. 
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CdLS Foundation earns coveted 4-star rating from Charity Navigator


The Cornelia de Lange Syndrome (CdLS) Foundation earned a 4-star rating for sound fiscal management practices and commitment to accountability and transparency from Charity Navigator, America's largest independent charity evaluator. This is the fifth consecutive time that the CdLS Foundation has earned this top distinction.

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Locals Run Saratoga Palio for Rare Genetic Disorder, Family Members

Saratoga Springs, NY - (September 15, 2015) Local families will join together as part of Team CdLS at the Saratoga Palio 5K and Half Marathon on September 20. These 12 runners are hitting the pavement for a cause close to their hearts, the Cornelia de Lange Syndrome (CdLS) Foundation. 

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Eating Pizza, Raising Funds for Rare Genetic Disorder

HAMPTON, NH - (July 27, 2015) On August 10, the Community Oven Pizzeria will host a fundraising night for the Cornelia de Lange Syndrome (CdLS) Foundation, from 5-9:00 p.m. Though you may have not heard of CdLS, a rare genetic disorder, event host, Brenda Shepard, bets that it's closer to your community than you think. 
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Local Father Gets "DOWN AND DIRTY" for Son with Rare Genetic Disorder


PHILADELPHIA, PA--(July 8, 2015) On July 26, Mike Feehan of Chester Springs, PA, will be partaking in his sixth run for Team CdLS, the Merrell Down and Dirty 5K, in honor of his son Connor, 7, who has Cornelia de Lange Syndrome (CdLS). 

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CdLS in the News

Honey for charity: Roland Park beekeepers harvest 1,200 jars from local hives

08/23/16 , http://www.baltimoresun.com/news/maryland/baltimore-city/bs-md-city-honey-harvest-20160821-story.html
The stickiest, most labor-intensive part of harvesting honey is also the most satisfying to watch.
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Paradise girl not letting her condition slow her down

08/16/16 , http://www.actionnewsnow.com/news/paradise-girl-not-letting-her-condition-slow-her-down/
Cornelia de Lange Syndrome is a fairly rare genetic disorder that can cause physical, cognitive and medical challenges, but one Paradise girl isn't letting her condition slow her down.
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Torrington residents recognized for work with foundation centered around genetic disorder

07/18/16 , http://www.registercitizen.com/article/RC/20160715/NEWS/160719734
A Torrington couple has been recognized for their longtime work with the Cornelia de Lange Syndrome Foundation, and were recently inducted as members of the de Lange society. The organization issued a statement regarding the honor earlier this week.
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Going all in for Addison

05/16/16 , http://www.journalreview.com/news/article_c5cd6a44-18a4-11e6-8732-bf443425e44a.html
There will be a lot of purple inside Nicholson Elementary today. The proof is in the amount of purple that filled the halls of Hose Elementary today.
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Eli's Story: Living With CdLS

03/03/16 , http://www.wdtv.com/wdtv.cfm?func=view§ion=5-News&item=Elis-Story-Living-With-CdLS-29121
Eli is a happy, 4-year-old boy from Terra Alta. He loves playing with his toys and is constantly bouncing around the house. But, Eli also lives with a rare condition called Cornelia De Lange Syndrome, or CdLS.
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