Press Room Home > May 2009 Archives

Hunter is Knowle's family 'miracle'

05/29/09 , Hampton Union
Everybody loves Hunter....
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Parents host 17th annual CdLS Charity Golf Tournament to benefit children with rare genetic disorder

05/14/09
The Cornelia de Lange Syndrome (CdLS) Charity Golf Tournament takes to the fairway for its 17th year on, Monday May 18...
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Educators receiving education

05/14/09 , Iowa Park Leader
Two educators have received an education after taking in a young man diagnosed with Cornelia de Lange Syndrome....
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Families across the country "tag the day" for CdLS

05/13/09
Benefit yard sales take place throughout the country Saturday, June 6, as part of the...
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City mom feels blessed having a CdLS child

05/09/09 , Columbus Telegram
Rachelle Riedmiller always knew she wanted to be a mom....

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Ben & Jane Young man has made tremendous strides in overcoming handicap of rare congenital syndrome.

05/04/09 , Laconia (NH) Daily Sun.

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CdLS Foundation Celebrates Awareness Day May 9: Parents learn to advocate for children with uncommon syndrome

05/04/09 , Journal Newspaper Group
As the 20th anniversary of Cornelia de Lange Syndrome (CdLS) Awareness Day is celebrated on May 9, many people still ask, "Cornelia-d-what?"...
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Parents host 17th annual CdLS Charity Golf Tournament

05/04/09
The Cornelia de Lange Syndrome (CdLS) Charity Golf Tournament takes to the fairway for its 17th year on Monday, May 18...
Read Full Story »