Press Room Home > February 2011 Archives

Suicide Skateboards: Young man with CdLS follows his dreams

02/28/11 , Hard Times Magazine

Owner and Ocean City local Josh Levis takes pride in not only his merchandise, but also the message behind his company. He has had to overcome more than this fair share of setbacks, but has always been determined to make the best of things. When Josh was four years old, his parents told him that he had been diagnosed with CdLS, or Cornelia de Lange Syndrome.

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Foundation receives $1,000 grant from Build-A-Bear

The Cornelia de Lange Syndrome (CdLS) Foundation has received a $1,000 grant from the Build-A-Bear Workshop Bear Hugs Foundation. The grant will support the Foundation's national research program.
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CdLS Foundation adds new board members


The Cornelia de Lange Syndrome (CdLS) Foundation has added eight new members to its Board of Directors, class of 2013.

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Technology Gives Young Boy a Voice

02/09/11 , CBS 3 Philadelphia

For nine-year-old Andrew Patitucci, music was once the only form of expression. Born with Cornelia de Lange Syndrome, the developmental disorder affected his size and speech. 

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