Recent News in April 2011

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News Releases

Grandfather sets off on cross-country motorcycle ride, from Manchester to San Francisco, in honor of his grandson and others with rare genetic syndrome


What would make a 70-year-old man ride his Harley-Davidson 3,800 miles across America? Simple: To help his grandson and other children born with Cornelia de Lange Syndrome (CdLS), a little known genetic syndrome that causes a range of medical, physical and cognitive challenges to those born with it.

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CdLS Foundation celebrates National CdLS Awareness Day, marks 30 years helping families affected by the syndrome


Just over 30 years ago, a group of moms and dads from across the country came together in a Maryland state park with one common goal: to make sure that no one caring for a child with Cornelia de Lange Syndrome (CdLS) would ever have to feel alone.

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CdLS in the News