Recent News in May 2011

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CdLS in the News

Motorcyclist crossing country for grandson

05/20/11 , Cincinnati Enquirer

Ken Fouts' 42-year career as a television director took him to a World Series, a Super Bowl, a summer and winter Olympics and several thousand other sporting events. In all, he traveled about 4 million miles

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Toddler Teaches Life Lessons

05/17/11 , Journal Review

Today isn't Addison Brown's birthday, but it's a significant day just the same for the Crawfordsville toddler and her family.

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Villager's cross-country motorcycle trek aims to raise funds, awareness for Cornelia de Lange Syndrome

05/17/11 , Daily Sun

For Adrian Raya-Fouts' family, birthdays are a big deal. Born with a severe case of Cornelia de Lange Syndrome -- a genetic disorder that presents physical, cognitive and medical challenges -- doctors did not have a lot of hope for Adrian.

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Baby Cambria surprises family with improvements

05/09/11 , Yuma Sun

Soon after Blair Flint's daughter, Cambria, celebrated her first birthday, she surprised everyone by eating on her own. It might not be a big deal for most babies, but Cambria was born with Cornelia de Lange syndrome (CdLS), a rare congenital condition that makes it difficult to eat because oral muscles don't work well.
 

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Vacaville Residents Deal with CdLS

05/06/11 , Vacaville Reporter

With their dark hair, thin eyebrows, small stature, similar builds and winsome smiles, Anya Janoski and Claudia Tiongson could be mistaken for sisters.

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