Press Room Home > June 2011 Archives

Hanover resident named ambassador for running team

06/21/11 , Hanover Evening Sun

All it takes is a slight mutation, causing the telltale black eyebrows, squinty eyes and upturned nose - all signs of a rare genetic disorder that still baffles doctors.

When Stephanie Vojtecky was born with those same features her head was the size of a baseball.

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Foundation funds two research projects

06/15/11
As part of its 2011 small grants program, the Cornelia de Lange Syndrome (CdLS) Foundation awarded a total of $15,000 to researchers studying various aspects of CdLS.
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Long Island girl named ambassador of Team CdLS' New York City Marathon team

06/08/11
Jenna K. of Wantagh, NY, has been named the 2011 Team CdLS Ambassador for the ING New York City Marathon. Team CdLS raises money to benefit the CdLS Foundation, a national support organization dedicated to serving families of children affected by CdLS, a little-known genetic condition. Jenna, 4, was diagnosed at birth with CdLS.
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Team CdLS names ambassador for Chicago Marathon

06/07/11
Breeze Davis of Downers Grove, IL, has been named the 2011 Team CdLS Ambassador for the Bank of America Chicago Marathon. Team CdLS raises money to benefit the CdLS Foundation, a national support organization dedicated to serving families of children affected by CdLS, a commonly unknown genetic condition. Breeze, 7, was diagnosed with CdLS at age three.
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Team CdLS names ambassador for Baltimore Running Fest

06/07/11
Stephanie Vojtecky of Hanover, PA, has been named the 2011 Team CdLS Ambassador for the Baltimore Running Festival in Baltimore, MD. Team CdLS raises money to benefit the CdLS Foundation, a national support organization dedicated to serving families of children affected by CdLS, a commonly unknown genetic condition. Stephanie, 20, was diagnosed with CdLS at age three.
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Walk planned for Seabrook boy with rare disorder

06/07/11 , Hampton Union

Nothing makes time pass more quickly than an annual event, and as the 4th annual "Hoof-it for Hunter" walk approaches, the changes in 5-year-old Hunter Knowles in the year that has passed are nothing short of amazing.

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