Press Room Home > July 2012 Archives

Charity Team heads to Chicago


Team CdLS to run in Bank of America Chicago Marathon


CHICAGO, IL (July 16, 2012) - Twelve dedicated runners are set to participate on Team CdLS in the famous Bank of America Chicago Marathon on October 7th.  Team members are among an estimated 45,000 participants in the 26.2-mile run. The team's goal is to raise $50,000 for the CdLS Foundation, based in Avon, CT.

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Elmhurst professor receives honor from national organization

07/09/12 ,
The Cornelia de Lange Syndrome (CdLS) Foundation honored Elmhurst College professor Marjorie Goodban with the John King Award on June 23. 

Avon organization accepted into federal rare disease pilot program

The Cornelia de Lange Syndrome (CdLS) Foundation is one of just 34 organizations from around the country accepted into the National Institutes of Health's (NIH) Global Rare Disease Patient Registry and Date Repository (GRDR) pilot program.

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Walking Among Heroes - A Grandmother's Story

07/06/12 , Kanabec County Times
What is a hero? The dictionary says it's a person with distinguished qualities and abilities - admired for their brave deeds. Our military personnel, police officers and firefighters immediately come to mind. Read full story >