Press Room Home > January 2013 Archives

Bristol Resident Promoted at National Nonprofit

01/31/13 , Farmington and Avon Patch.com
Bristol, CT (January 30, 2013)-- Kelly Brown of Bristol has been promoted to assistant executive director at the Cornelia de Lange Syndrome (CdLS) Foundation located in Avon. 

Bristol Resident Promoted at National Nonprofit

01/30/13
Bristol, CT (January 30, 2013)-- Kelly Brown of Bristol has been promoted to assistant executive director at the Cornelia de Lange Syndrome (CdLS) Foundation located in Avon. 

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Catonsville Resident Joins Board of Directors for National Nonprofit

01/25/13
Catonsville, MD (January 17, 2013)-- The Cornelia de Lange Syndrome (CdLS) Foundation is proud to announce that Julia O'Connor, Ph.D. has joined its Board of Directors, which serves as a guide for the national nonprofit, located in Avon, CT.
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Mother Races in Memory of Son

01/18/13
Goldsboro, NC (January 18, 2013)-- Baylen was born June 6, 2010. When he was born, Baylen's mother found out he had a rare genetic disorder, called Cornelia de Lange Syndrome (CdLS). His family gave Baylen the nickname, "Super B," because despite the odds, he kept fighting.

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Liam Hilferty of Birmingham is one of three with genetic mutation

01/14/13 , Daily Local News - Chester County, PA
Monday, January 14,2013- Liam Hilferty and his fraternal twin brother, Joseph, of Birmingham, were born in August 2000 and were seemingly healthy -- until Liam had respiratory issues the next day.

Simsbury Resident Joins National Nonprofit

01/14/13
Simsbury, CT (January 14, 2013)-- The Cornelia de Lange Syndrome (CdLS) Foundation is pleased to announce Kelly Madin as its new family service coordinator. Madin will provide numerous support services for families across the country for the national nonprofit, located in Avon, CT.
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