Recent News in February 2013

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News Releases

Local Nonprofit to Observe Rare Disease Day

The Cornelia de Lange Syndrome (CdLS) Foundation will be joining the National Organization for Rare Disorders (NORD) and others around the world in observing World Rare Disease Day on February 28, 2013. On this day, millions of patients and their families will share their stories to focus a spotlight on rare diseases as an important global public health concern.
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National Nonprofit Makes Historic Board of Directors Appointment

Greensboro, NC (February 19, 2013)-- The Cornelia de Lange Syndrome (CdLS) Foundation is proud to announce that Maegan Lowrey has joined its Board of Directors, which serves as a guide for the national nonprofit, located in Avon, CT.
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CdLS in the News