Press Room Home > April 2013 Archives

Asheville to observe National Cornelia de Lange Syndrome (CdLS) Awareness Day

04/25/13 , http://www.mountainx.com/article/49736/Asheville-to-observe-National-Cornelia-de-Lange-Syndrome-CdLS-Awareness-Day
Asheville, NC - Through a proclamation by Mayor Terry Bellamy, the City of Asheville joins cities, states and individuals nationwide in observing May 11th as National Cornelia de Lange Syndrome (CdLS) Awareness Day.
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Teen with mind of toddler falls in government aid loophole after father dies

04/17/13 , myfox8.com
LEWISVILLE, N.C. -- Max Butkus is one of many children with a disability who are being denied government assistance because one of their parents has died.
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Online votes sought for wheelchair accessible vehicle

04/09/13 , Janesville Gazette
TOWN OF BELOIT -- For 3-year-old Landon Wilson, a trip to the doctor is quite the process.
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Organization Inducts Couple

04/05/13 , http://www.news-sentinel.com
The Cornelia de Lange Syndrome Foundation announced Frederick and Linda Hasecke will be honored as inductees of the first annual de Lange Society. 
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