Press Room Home > May 2013 Archives

UCI receives second five-year designation as Cornelia de Lange Syndrome Center of Excellence

05/30/13 , http://www.bio.uci.edu/
Irvine, Calif. - The Cornelia de Lange Syndrome (CdLS) Foundation recently designated the University of California, Irvine, as a Cornelia de Lange Syndrome Center of Excellence for a second five-year period. This designation recognizes continued excellence and outstanding achievement in research work related to CdLS by five UC Irvine faculty.
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'Augie's Angels' event Saturday

05/23/13 , SangerHerald.com
Sanger resident Maria Soto is hoping the generosity of the community can help provide much-needed medical treatment for her 18-year-old son Augie.
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Thomaston Children's Festival to be held May 25

05/22/13 , http://www.penbaypilot.com/
THOMASTON -- The 2nd Annual Thomaston Children's Festival will be held on Saturday, May 25 from 10 a.m. to 2 p.m. on the Thomaston Academy lawn and will be a day of fun for children of all ages as well as an opportunity to celebrate the town of Thomaston.
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21st Annual Charity Golf Tourney to Benefit Those with Rare Disorder

05/17/13
Ipswich, MA - (May 6, 2013) The Cornelia de Lange Syndrome (CdLS) Foundation, a national nonprofit family support organization, is hosting its sold out 21st annual New England Golf Tournament for CdLS at Ipswich Country Club in Ipswich on May 20.
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Nicholson Raises Awareness for CdLS

05/11/13 , http://www.journalreview.com/
As Addison Brown made her way into Nicholson Elementary School on Friday morning several children swarmed around the tiny girl with bouncy brown curls and a huge smile.
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Littleton Woman Helps Raise Awareness of Cornelia de Lange Syndrome

05/11/13 , http://www.wickedlocal.com/
Littleton -- Diane Lessa of Littleton is joining families across the country to raise awareness of Cornelia de Lange Syndrome or CdLS on National CdLS Awareness Day, Saturday, May 11.
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Finding Her Place

05/10/13 , http://www.thepampanews.com/
For Elaineah Jackson, fitting in among her peers has never been easy. Jackson, 11, of Pampa, suffers from Cornelia de Lange Syndrome (CDLS) which has left a couple of her fingers slightly deformed. But that is Elaineah's only visible physical handicap and, if no one had told you she deals with CDLS, you may never know it just by looking at her.
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May 11 is CdLS Awareness Day

05/10/13 , http://blogs.detroitnews.com/
It's amazing how four letters can change your life. Four letters have had a profound impact on the person I am today, the mother I am, and the wife. The letters are "CdLS" and they stand for a little heard of genetic condition called Cornelia de Lange Syndrome.
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Annual Awareness Day for Rare Disorder Gears Up Nationwide

05/01/13
Avon, CT (May 1, 2013)-- Families across the country have been reaching out for months, raising awareness among politicians, neighbors and members of their community. They are requesting proclamations, distributing bookmarks and hanging fliers.
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