Press Room Home > June 2013 Archives

Our Angels

06/22/13 , Spencer Daily Reporter
The Bob and Kate Shaw family is hosting the Our Angels Concert - A Night to Remember Hud and Angela Shaw and all CdLS families at 8 p.m. Saturday, June 22 at the Sami Center in Spirit Lake. Hud passed away at the age of 3 from a viral infection. Angela passed away at the age of five.
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OUR ANGELS Shaw family spreading awareness for CdLS

06/19/13 , http://www.dickinsoncountynews.com/
Angela Shaw had a big heart. She also had a playful personality and a strong will to live. A rare genetic disease called Cornelia de Lange Syndrome (CdLS) robbed Angela of a full lifetime here on earth. She would've been 40 years old in 2013. Her parents, Bob and Kate have spent the last 35 years spreading awareness about the disease.
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GALLAGHER: After decades, bonds forged over rare disease still strong

06/19/13 , http://siouxcityjournal.com/
SPIRIT LAKE, Iowa | Four decades later, Bob Shaw talks about the preciousness in the photo. Pausing, he thinks of two babes he and wife Kathleen lost. Moving ahead, he tells their story.
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Family Races in Honor of Newborn with Rare Syndrome

06/11/13
Avon, CT (June 11, 2013) - The Cornelia de Lange Syndrome (CdLS) Foundation, a national nonprofit family support organization, is proud to have eight runners representing Team CdLS in the 2013 Merrell Down & Dirty 5k in Hartford on Sunday, June 23.
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