Recent News in February 2014

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CdLS in the News

Great Day - KCWI 23 - Rare Disease Day Coverage

02/28/14 , http://www.youtube.com/watch?v=j2mmP7bAJbI
Rare Disease Day - Published on Feb 28, 2014 - Every Day is a Great Day to watch KCWI23-HD!

Parent of disabled child sues N. Allegheny district over transportation dispute

02/18/14 , http://triblive.com/news/adminpage/5620367-74/district-lawsuit-care?printerfriendly=true#axzz2v0BS6Gf7
The parent of a 7-year-old boy with severe disabilities claims in federal lawsuit filed Tuesday that North Allegheny School District is violating federal law by refusing to transport him between a private day care center and school that are outside the district's boundaries.
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Mar-Mac Friends Helping Friends: Helping because they can

02/11/14 , http://www.claytoncountyregister.com/articles/2014/02/11/mar-mac-friends-helping-friends-helping-because-they-can
The Mar-Mac Friends Helping Friends will hold their annual Winter Triathlon and Benefit Feb. 14-15, marking the 10th year of the event, as well as the year the group finally got an official name.
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Robert Boneberg of Maplewood takes on role of president of nonprofit

02/03/14 , http://www.nj.com/independentpress/index.ssf/2014/02/robert_boneberg_of_maplewood_t.html
Attorney Robert Boneberg of Maplewood will take on the role of president of the Board of Directors of the Cornelia de Lange Syndrome (CdLS) Foundation in 2014. Boneberg and his wife, Karen Aschenbrenner, were introduced to the Foundation when their son, Alex, 26, was diagnosed with CdLS.
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