Recent News in May 2014

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CdLS in the News

Community to host fundraiser for Siouxland girl with rare genetic disorder

05/11/14 ,
3-year-old Ella Watkins, her three brothers, and their two loving parents have a beautiful and happy life, but they have had their share of challenges.

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Hose focuses on CdLS awareness

05/10/14 ,
Everyone at Hose Elementary School who knows seven-year-old Addison Brown simply loves her. The personable kindergarten student, who was born with a rare disorder called Cornelia de Lange Syndrome, has inspired many who have gotten to know her. On Friday, the school took a moment to become more aware of those who are different.
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Montana girl has rare genetic disease

05/02/14 ,
BILLINGS - Missing arms or fingers, uni-brows and small stature are all symptoms associated with Cornelia De Lange Syndrome.
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