Recent News in May 2014

Press Room Home > May 2014 Archives
News Releases
CdLS in the News

Community to host fundraiser for Siouxland girl with rare genetic disorder

05/11/14 , http://www.ktiv.com/story/25487531/2014/05/11/community-to-host-fundraiser-for-siouxland-girl-with-rare-genetic-disorder
3-year-old Ella Watkins, her three brothers, and their two loving parents have a beautiful and happy life, but they have had their share of challenges.

Read Full Story »

Hose focuses on CdLS awareness

05/10/14 , http://www.journalreview.com/news/article_42222ca0-d7d0-11e3-be54-001a4bcf887a.html
Everyone at Hose Elementary School who knows seven-year-old Addison Brown simply loves her. The personable kindergarten student, who was born with a rare disorder called Cornelia de Lange Syndrome, has inspired many who have gotten to know her. On Friday, the school took a moment to become more aware of those who are different.
Read Full Story »

Montana girl has rare genetic disease

05/02/14 , http://www.kaj18.com/news/montana-girl-has-rare-genetic-disease/
BILLINGS - Missing arms or fingers, uni-brows and small stature are all symptoms associated with Cornelia De Lange Syndrome.
Read Full Story »