Recent News in September 2014

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News Releases

Locals Run Saratoga Palio for Rare Genetic Disorder, Family Members

09/15/14
Local families will join together as part of Team CdLS at the Saratoga Palio 5K and Half Marathon on September 21. These 36 runners are hitting the pavement for a cause close to their hearts, the Cornelia de Lange Syndrome (CdLS) Foundation.
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26th Annual Charity Golf Tourney to Benefit Individuals with Rare Disorder

09/08/14
The Cornelia de Lange Syndrome (CdLS) Foundation, a national nonprofit family support organization, is hosting its 26th annual CdLS Charity Golf Tournament at Pevely Farms Golf Club in St. Louis, MO, on September 15.
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Softball Tournament Raises Awareness, Funds for Genetic Disorder

09/08/14
The 4th Annual Arzillo Industries Softball Tournament takes place September 27 & 28 at Northside Park in Norfolk, VA. The event is hosted by the Arzillo family of Norfolk, VA, parents of Steven, 20, who was born with CdLS, a rare genetic disorder that causes a variety of physical, cognitive and developmental disabilities.
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5th Annual Brew & BBQ to Benefit Individuals with Rare Disorder

09/03/14
The Cornelia de Lange Syndrome (CdLS) Foundation, a national nonprofit family support organization, is hosting its 5th annual Brew & BBQ for CdLS at Jeckyll Brewing in Alpharetta, GA, on September 27.
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CdLS in the News

5th annual Brew & BBQ benefit

09/10/14 , http://www.northfulton.com/Articles-COMMUNITY-NEWS-c-2014-09-10-205209.114126-sub-5th-annual-Brew-and-BBQ-benefit.html
ALPHARETTA, Ga. - The Cornelia de Lange Syndrome (CdLS) Foundation, a national nonprofit family support organization, is hosting its fifth annual Brew & BBQ for CdLS Saturday, Sept. 27, at Jekyll Brewing in Alpharetta.
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