Recent News in May 2015

Press Room Home > May 2015 Archives
News Releases
CdLS in the News

10 Things I Discovered Because of My Brother With Special Needs

05/27/15 , http://themighty.com/2015/05/10-things-i-discovered-about-life-because-of-my-brother-with-special-needs1/
My middle brother, Gabe, is almost 27. He has a syndrome called Cornelia deLange Syndrome (CdLS). He can't use the bathroom on his own and does not really speak. Growing up with a special needs sibling taught me a lot of lessons and helped shape me into the person I am today.
Read Full Story »

Open hearts, open doors

05/26/15 , http://kdhnews.com/texappeal/features/open-hearts-open-doors/article_56d260ac-03c6-11e5-a1e5-efa0df563c36.html
Philanthropic women share a common goal: Helping those in need
Read Full Story »

Online beauty products site tugs at customers' hearts

05/11/15 , http://www.dallasnews.com/business/columnists/cheryl-hall/20150509-hall-online-beauty-products-site-tugs-at-customers-hearts.ece
This is the day when mothers are lavished with untold millions in expensive fragrances, makeup and body care luxuries. What if 5 percent of the purchase price of every gift were donated to the mom's favorite charity?

Read Full Story »

Local company rallies for awareness of rare genetic disorder

05/07/15 , http://www.yourhoustonnews.com/deer_park/living/local-company-rallies-for-awareness-of-rare-genetic-disorder/article_316f8424-073f-5b3e-af84-56916d75a524.html
Luanna "Lu" Fielder, and her husband, Bill, are the owners of Fielder Electric Supply Company out of Houston. They also have a daughter, Jaclyn, 23, who has a rare genetic disorder, called Cornelia de Lange Syndrome (CdLS). In honor of National CdLS Awareness Day, employees of Fielder Electric Supply Company will be hosting a special day on Friday, May 15.
Read Full Story »

Valley Community Raising Awareness for Girl with Rare Disorder

05/07/15 , http://www.chewelahindependent.com/news/local-news/2292-valley-community-raising-awareness-for-girl-with-rare-disorder
In honor of National Cornelia de Lange Syndrome (CdLS) Awareness Day, and also a special little girl named Chloe, community members, family and friends will come together at Valley Park in Valley on May 8 at 3 p.m. to understand differences and learn about acceptance.
Read Full Story »

Iowa School for the Deaf families share reasons for placing students

05/07/15 , http://www.omaha.com/news/goodnews/iowa-school-for-the-deaf-families-share-reasons-for-placing/article_6ba36bc8-f4c8-11e4-8f0f-3b132685a2c9.html
COUNCIL BLUFFS - A few weeks after Izabelle Schon was born, doctors diagnosed her with Cornelia de Lange Syndrome, a genetic disorder that slows her development. She was also diagnosed as deaf.
Read Full Story »

ISD families share reasons for placing students

05/07/15 , http://www.nonpareilonline.com/news/local/isd-families-share-reasons-for-placing-students/article_636d673a-46a0-5f03-9ee4-02aed2480b3d.html?mode=print
A few weeks after Izabelle Schon was born, doctors diagnosed her with Cornelia de Lange Syndrome, a genetic disorder that slows her development. She was also diagnosed as deaf.
Read Full Story »

C'ville schools raising awareness for rare disorder

05/04/15 , http://www.thepaper24-7.com/Content/News/Local-News/Article/C-ville-schools-raising-awareness-for-rare-disorder/23/22/51533
In honor of National Cornelia de Lange Syndrome (CdLS) Awareness Day, and also a special little girl named Addison, two schools are celebrating in Crawfordsville, on May 8, each in their own special way.
Read Full Story »

Schools raise awareness for student with rare disorder

05/04/15 , http://www.journalreview.com/news/article_db7ec73e-f073-11e4-8748-bb4855207748.html
In honor of National Cornelia de Lange Syndrome (CdLS) Awareness Day, and also a special little girl named Addison, two Crawfordsville schools are celebrating Friday, each in their own special way.
Read Full Story »