Recent News in July 2015

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News Releases

Eating Pizza, Raising Funds for Rare Genetic Disorder

07/28/15
HAMPTON, NH - (July 27, 2015) On August 10, the Community Oven Pizzeria will host a fundraising night for the Cornelia de Lange Syndrome (CdLS) Foundation, from 5-9:00 p.m. Though you may have not heard of CdLS, a rare genetic disorder, event host, Brenda Shepard, bets that it's closer to your community than you think. 
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Local Father Gets "DOWN AND DIRTY" for Son with Rare Genetic Disorder

07/14/15

PHILADELPHIA, PA--(July 8, 2015) On July 26, Mike Feehan of Chester Springs, PA, will be partaking in his sixth run for Team CdLS, the Merrell Down and Dirty 5K, in honor of his son Connor, 7, who has Cornelia de Lange Syndrome (CdLS). 

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CdLS in the News

Local man participates in mud run to honor daughter

07/21/15 , http://www.app.com/story/life/wellness/2015/07/21/mud-run/30425273/
On July 11, Shawn Carr participated in the Rugged Maniac 5K obstacle course at Raceway Park in Englishtown in honor of his daughter. Along with his wife, brother and college friend, Carr fundraised for the Cornelia de Lange Syndrome Foundation while training for the race.
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New Genetic Syndrome Found, Arising from Errors in 'Master Switch' During Early Developmen

07/02/15 , prnewswire.com
PHILADELPHIA, March 2, 2015 /PRNewswire-USNewswire/ -- Analyzing a puzzling multisystem disorder in three children, genetic experts have identified a new syndrome, shedding light on key biological processes during human development. The research also provides important information to help caregivers manage the disorder, and may offer clues to eventually treating it.
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