Recent News in August 2015

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CdLS in the News

Finding compassionate friends amid grief

08/28/15 , http://journaltimes.com/lifestyles/faith-and-values/finding-compassionate-friends-amid-grief/article_bf5c64ad-1610-514b-93d9-35e3b024f90b.html
After her daughter was killed 25 years ago this summer, it was a struggle to get out of bed each morning.
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Mom's beautiful tribute to daughter turns kids' disabilities into 'super powers'

08/04/15 , www.today.com/parents/moms-beautiful-tribute-daughter-turns-kids-disabilities-super-powers-t35601
Rachel Callander's daughter was born with a rare chromosomal condition that doctors said left her "incompatible with life." She would have dysmorphic features, grow up developmentally delayed and would never walk or talk.
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Fundraiser established to help toddler attend CdLS conference

08/04/15 , www.westsenecasun.com/fundraiser-established-to-help-toddler-attend-cdls-conference/
Her name is Aubrey Garigen. She's only 2-years-old, but she's stealing hearts all around Western New York.

"She really is an inspiring kid, I must have to say," said Nicole Garigen, Aubrey's mom.
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Eat pizza, raise funds for rare genetic disorder

08/04/15 , http://www.seacoastonline.com/article/20150803/NEWS/150809800
HAMPTON - The Community Oven Pizzeria will host a fundraising night from 5 to 9 p.m. on Aug. 10 for the Cornelia de Lange Syndrome (CdLS) Foundation. Though you may have not heard of CdLS, a rare genetic disorder, event host, Brenda Shepard, bets that it's closer to your community than you think.
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